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Международного Европейского
комитета  по проблеме болезни Вильсона
"ЕВРОВИЛЬСОН"
 
 
 
 
 
 
ÖSTERREICH
http://www.morbus-wilson.at/
DANMARK http://www.wilsons.dk/
FRANCE http://orphanet.infobiogen.fr/associations/WILSON/WILSON.html
FRANCE http://www.abpmaladiewilson.fr/
DEUTSCHLAND http://www.morbus-wilson.de/
NORGE http://www.wilsonsdisease.net/
ROMANA http://www.wda-romania.org/
ESPANA http://www.infovigo.com/wilson/index.html
SVERIGE http://hem.passagen.se/wilsons/
NEDERLAND http://home.wanadoo.nl/~pcpoppel/
UK http://www.childliverdisease.org/
UK http://www.climb.org.uk/
USA http://www.wilsondisease.org/
 
   

Austria

Prof. Dr. Peter Ferenci Dept. Internal Medicine IV Gastroenterology and Hepatology Univ. of Vienna Vienna General Hospital (AKH) Waehringer Guertel 18-20 A 1090 Wien Austria Phone: +43 1 40400 4741 Fax: +43 1 40400 4735

Brazil

Dr. Egberto Reis Barbosa Dept. of Clinical Neurology Hospital das Clinicas da USP Rua Dr, Eneas de Carvalho Aguiar - 225 CEP 05403-000 Brazil E-mail: neuro@doencadewilson.org Dr. Eduardo Cançado Department of Gastroenterology Hospital das Clinicas da USP Rua Dr, Eneas de Carvalho Aguiar - 225 CEP 05403-000 Brazil E-mail: hepato@doencadewilson.org Web site: http://www.doencadewilson.org/

Canada

Dr. Eve Roberts Hospital for Sick Children Phone: (416) 813-7733 Email: eve.roberts@sickkids.ca

China

Prof. Xiuling Liang Department of Neurology First Affiliated Hospital Sun Yat-sen University of Medical Sciences 74 Zhongshang Road II Guangzhou, 510080 China Phone: 87755766 ext. 8290 Fax: 87750632 Web site: http://www.wilson-disease.com/

Costa Rica

Dr. Francisto J. Heiva Escuela autonoma de Ciencias Medicas Dr. A.V. Guzman Aoartado 77-1007 San Jose Costa Rica

Ethiopia

Richard Hodes, M.D., F.A.C.P. P.O. Box 7600 Addis Ababa Ethiopia Phone: 251-1-613827/27 Fax: 251-1-612855 

Germany

Prof. Wolfgang Stremmel, M.D. University Hospital of Heidelberg Dept. of Internal Medicine Bergheimer Strasse 58 D-69115 Heidelberg Germany Phone: +49 6221 5687-01 Fax: +49 6221 564116

Hungary

Gabor Firneisz, M.D. Ferenc Szalay, M.D. Hepatology Unit 1st Department of Medicine Semmelweis University Koranyi S u. 2/A, Budapest H-1083 Hungary Phone: +36-1-2100278/1500 Fax: +36-1-3130250 E-mail: FIRNEISZ@bel1.sote.hu

India

ROWIKEM Dr. Ashish Bavdekar Associate Consultant Pediatric Gastroenterologist Liver and Gastroenterology Unit Department of Pediatrics T.D.H. Building, Ground Floor K.E.M. Hospital, Rasta Peth Pune 411011 India Phone: 91-20-4037342/5538728 Mobile: 98220 56174 Fax: 91-020-6125603 E-mail: kemhrc@vsnl.com or bavdekar@vsnl.com Clinics for Wilson's Disease: Mondays and Thursdays 11:00 a.m. - 1:00 p.m.

WISDOM Dr. D. P. Pande, Ph.D.  Wilson Disease Observation and Management Dhawalgiri 17A Anushakti Nagar PO Mumbai -400094 India Voice mail/Phone: 91-22- 2559 5515 (3:00 p.m. to 4:00 p.m.) or 2557 2947 (8:00 p.m. to 9:00 p.m.) E-mail patient support: indiawisdom@yahoo.com E-mail research collaborations: indiawisdom@hotmail.com

Clinics for Wilson's Disease Patients: Monday, Wednesday and Friday: (3:00 p.m. to 5:00 p.m.) For appointments, phone: 91-22- 24222160 Secretary, WISDOM, Dr. Aabha Nagral, Consultant Gastroenterologist & Hepatologist O-18, Bhavna Building 2nd floor Veer Savarkar Road Prabhadevi Clinic Mumbai-400025 India

Israel

Prof. Yaron Ilan, M.D. Liver and Gastroenterology Units Department of Medicine Hadassah University Hospital P.O. Box 12000, 91120 Jerusalem Israel Phone: 972-2-6420338 E-mail: ilan@hadassah.org.il Dr. Ran Oren Liver Unit Urasky Medical Center Tel Aviv Israel Phone: 972-3-6974280

Italy

Dr. Giacomo Carlo Sturniolo Universita Degu Studi Di Padova Dept. Scienze Chirurgiche e Gastroenterologishce Div. Gastroenterologia, Via Giustiniani, 2 Padova  35127 Italy Phone: +39-49-8218726 Fax: +39-49-8760820 E-mail: gc.sturniolo@unipd.it

Massimo Zuin, M.D. San Paolo School of Medicine - Clinica Medica University of Milan via A. Di Rudinì, 8 Milan 20142 Italy Phone: +39.02.89129975 Fax +39.02.89123960 E-mail: massimo.zuin@unimi.it 

Japan

Kenji Nakayama, Ph.D.  Department of Clinical Pathology Hokkaido Institute of Public Health Phone: +81-11-747-2211 (Ex. 731)  Fax: +81-11-736-9476 

New Zealand

Edward J. Gane, MBchB, M.D., FRACP Associate Professor of Medicine New Zealand Liver Transplant Unit Auckland Hospital Park Road Auckland New Zealand Phone: 00-649-529-4001 Fax: 00-649-529-4061 Mobile: 00-64-21-548-371 (LIVER1)

Poland

Anna Czlonkowska, M.D. Dept. of Cerebrovascular Disease Inst. of Psychiatry and Neurology Sopbieskiego 1/9 PL-02-957 Warsaw Poland Fax: 4822-424023 E-mail: czlonkow@ipin.edu.pl  

Romania

Cristina Maria Mihai, M.D. Constanta County Hospital Pediatric Department, 8-th Floor 145 Tomis Boulevard Constanta 900591 Romania Phone/Fax: +40 241 553334 E-mail: cristinamaria_mihai@hotmail.com

Razvan Gospodaru, M.D. Saint Treime Hospital Iasi Str. Ateneului nr. 2 Iasi 700309 Romania Mobile: +40 723 342429 E-mail: grazvan1974@hotmail.com

Sweden

Kerstin Westermark, M.D. Dept. of Internal Medicine University Hospital S-75185 Uppsala Sweden Fax: 4618-510133  

United States

Fred Askari, M.D., Ph.D. Liver Clinic Pod D, 3rd Floor Taubman Ann Arbor, MI 48109-0352 Phone: (734) 936-0499 Fax: (734) 763-4574 Appointments: Contact Patti at 800-395-6431 E-mail: faskari@umich.edu

Nathan M. Bass, M.D., Ph.D. Professor of Medicine Medical Director, UCSF Liver Transplantation Service Division of Gastroenterology UCSF Medical Center and School of Medicine Box 0538, Rm 357-S San Francisco, CA 94143-0538 USA Phone: (415) 476-0719 Fax: (415) 476-0659

George J. Brewer, M.D. Department of Human Genetics University of Michigan 5022 Kresge Bldg. II Ann Arbor, MI 48109-0534 USA Phone: (734) 764-5499 Fax: (734) 763-3784 E-mail: brewergj@umich.edu

Dr. Joseph Eisenach Phone: (816) 478-2000 E-mail: jbeisenach@AOL.com

Peter Hedera, M.D. Assistant Professor Department of Neurology Vanderbilt University 465 21st Avenue, South 6140 MRB III Nashville, TN  37232-8552 USA Phone: (615) 936-3920   Fax: (615) 322-5517 E-mail: peter.hedera@vanderbilt.edu

Saul J. Karpen, M.D., Ph.D.  Director, Texas Children's Liver Center  Associate Professor of Pediatrics/GI & Nutrition  Baylor College of Medicine  Feigin Center, Room 860B  1102 Bates Street  Houston, TX 77030  USA Phone: (832) 824-3754  Fax: (832) 825-4893  E-mail: skarpen@bcm.tmc.edu

Kris Kowdley, M.D. Associate Professor of Medicine Division of Gastroenterology/Hepatology University of Washington Seattle, WA Phone: (206) 598-2076 Fax: (206) 598-6706 E-mail: kkowdley@u.washington.edu

Lorenzo Rossaro, M.D. Professor and Chief Division of Gastroenterology and Hepatology University of California, Davis Internal Medicine - Transplant HSF 2nd Floor 2233 Stockton Blvd. Sacramento, CA  95817 Phone:  (916) 734-8686 Fax: (916) 734-8698 E-mail:  lorenzo.rossaro@ucdmc.ucdavis.edu

Henrietta Salazar UCLA School of Medicine Department of Neurology 710 Westwood Plaza Los Angeles, CA 90095 USA Phone: (310) 206-9799 Fax (310) 206-9819 E-mail: hsalazar@ucla.edu

Michael Schilsky, M.D. Associate Professor of Clinical Medicine Medical Director, Center for Liver Disease and Transplantation Weill Cornell Medical Center 525 East 68th Street, Box 98 New York, NY 10021 Phone: (212) 746-4129 Fax: (212) 746-8974 E-mail: mls2003@med.cornell.edu

Burton Scott, Ph.D., M.D. Assistant Clinical Professor of Medicine (Neurology) Duke Movement Disorders Clinic 932 Morreene Road Durham, NC 27705 Phone: (919) 668-2493 Fax: (919) 681-4935 E-mail: scott007@mc.duke.edu

Benjamin Shneider, M.D. The Mount Sinai Medical Center Director, Pediatric Hepatology P.O. Box 1633 One Gustave Levy Place New York, NY 10029-6574 Phone: (212) 241-6227

Miodra Velickovic, M.D. Movement Disorders Center Box 1637 Department of Neurology The Mount Sinai Medical Center 5 East Street, 1st Floor New York, NY 10029-6574 Phone: (212) 241-5607 E-mail: miodrag.velickovic@mssm.edu

Yugoslavia

Slobodan Kazic, M.D. Zvezdara Hospital Dimitrija Tucovica 161 11000 Belgrade Yugoslavia Phone: 381-11-410275 E-mail: kazic@net.yu

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Canada

 

 

George Feldmann 1109-110 Adamar Rd. Winnipeg, Manitoba R3T 3M3 Canada Phone: (204) 282-3561 E-mail: feldmann@mts.net

Jean Perog Box 21, Quilchena, British Columbia V0E 2R0 Canada Phone: (250) 372-2271 E-mail: jperog@telus.net

 

Australia

Dalia Mikha Fax: +61 (03) 9359 4980 TTY (only AU): 133677 + (03) 93594980 Email: lili_ms_scorpion_ilil@yahoo.com or blackdahlia@iprimus.com.au

Susan Kuiper Phone: +61 (0)408972185 Email: fiery_wa@hotmail.com

Belinda Starr Phone: +61 (0)429857445 Email: davsta4@bigpond.com

Austria

Morbus Wilson Selbsthilfegruppe c/o Susanne Danziger Cumberlandtstr. 12 A-1140 Vienna Austria Phone/Fax: +43 1 894 27 19 E-mail: kontakt@morbus-wilson.at Web site: www.morbus-wilson.at

Brazil

Associacaio Brasileira dos doentes de Wilson Sonia Knopf / Maria Aparecida Mesquita Ribeiro r. Haddock Lobo, 250 - ap.305 CEP 01414-000 Brazil Phone: (55-11) 3214-5520 Fax:  (55-11) 3846-7666 E-mail: associacao@doencadewilson.org

Netherlands

 

 

Wilson's Disease Association Peter van Poppel E-mail: pcpoppel@wanadoo.nl or zeiktevanwilson@go.to Web site: http://home.wanadoo.nl/~pcpoppel/ or http://www.go.to/ziektevanwilson

 

 

Denmark

 

 

Wilson's Disease Patient Association Torben Groennebaek, President E-mail: info@wilsons.dk Web site: www.wilsons.dk

Germany

 

 

Wilson's Disease Organization Morbus Wilson e.V. Geschдftsstelle Meraner Strabe 17 D-83024 Rosenheim Germany Phone: +49 8031 249230 Fax: +49 8031 43876 E-mail: info@morbus-wilson.de Web site: http://www.morbus-wilson.de

Stefan Sandler Gansbusch 12 D-42369 Wuppertal Germany Phone: +49 202 2986437 Fax: +49 202 2822-445 E-mail: sandler@wilsonsdisease.org

 

India

 

Dr. D.P. Pande, Ph.D., President, WISDOM Voice mail/Phone: 91-22- 2559 5515 (3:00 p.m. to 4:00 p.m.) or 2557 2947 (8:00 p.m. to 9:00 p.m.) E-mail patient support: indiawisdom@yahoo.com E-mail research collaborations:                                  indiawisdom@hotmail.com Dhawalgiri 17A Anushakti Nagar PO Mumbai 400094 India

New Zealand

 

 

Bethli Wainwright 5A Eyre Street, Henderson Heights Auckland New Zealand Phone: (H) (+64 9) 836-7107 Fax: (+64 9) 836-7104 E-mail: ptoli@ihug.co.nz

 

Phillipines

 

Vilma C. Dee 066 Sto. Nino St. Carmencita Village Talon 3,  Las Pinas City 1701 Phillipines Phone: (632) 805-8180 Fax: (632) 837-9323   E-mail: wdphils@hotmail.com

 

Romania

 

 

Mihaela Suta Calea Vitan nr. 219, bl. 10, parter, ap. 67 031291 Bucharest, Sector 3 Romania Phone: +40 743 409576 E-mail: katiusha20@yahoo.com Web site: http://www.wda-romania.org

 

South Africa

 

 

Pauline and Remo Castellan P.O. Box 73106 Fairland 2030 Johannesburg South Africa Phone/Fax: (+27) 11-4762577 E-mail: castellan@freemail.absa.co.za

 

Spain

 

 

Conchi Casas C/ Juan de Valladolid 4, 1° D 47014 Valladolid Spain Phone: 983-372150 E-mail: wilsons@teleline.es

 

Switzerland

 

Morbus Wilson Kontaktgruppe Schweiz Simon Ramseier, M.D. Seminarstr. 27 CH - 5400 Baden Switzerland E-mail: kontakt@morbus-wilson.ch Web site: www.morbus-wilson.ch

United Kingdom

 

 

Dr. Caroline Simms, Ph.D. 36 Sunningdale Drive, Woodborough Nottingham. NG14 6EQ United Kingdom E-mail: carolinesimms@hotmail.com Web site: www.wilsons-disease.org.uk

 

United States

Len Pytlak Len Pytlak, CPA, P.C. 180 Little Lake Drive Suite 3 Ann Arbor, MI 48103 Phone: 734-663-1313 E-mail: len@lenpytlakcpa.com

Lenore and Russell Sillery 152 Cheese Spring Rd. Wilton, CT 06897 Phone (home): 203-762-2372 Phone (work): 203-961-9993 E-mail: lsillery@sillery.com

 

 
 
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